Kourt is almost a month out from transplant. It is so hard to remember the past few weeks. I have lost all account of time. We are trying to get back to the normal routine of me home on weekends but due to carmegeden I will not be heading home ( 405&101) in LA closed all weekend. Kourt is doing so much better. I spent two days and nights at the hospital non stop so I could watch everything that was going on. Kourt was in so much pain all weekend. Sunday was so much better, I did to shower and stuff some food in my mouth but that is it. Mark went back home to finish things up for closing the store and pay some bills that we could not pay online. Family and friends are helping the big kids and Mark get through this month in SD. Not a small feat, Thank you to the neighbors who brought food and meals some people just left things by the font door. Greateful we found someone to rent Kourts room to help pay the bills, you do what you have to. Thank you! Stephnie, Kerrie, Bonnie, patty ,Chantal,Lora, Rachel,Serena,Connie,Jeanne,Allison,Ranee, All TX moms, everyone who has just pitched in and done something for us in the last month. I am sure I forgot someone? Sorry,I dont even know what day of the week it is. The only way I can discribe what its like is? Think of any of the TV shows that have a trauma secene in it…..Now stand in the middle for a month for 24/7. I think pictures are the best way to show what these amazing kids go through…they are amazing. Kourt is losing her hair again some of the anti rejection drugs are also used in chemo. She wants to dye her hair blue and green this time. good news is her kidneys seem to be kicking back in good thing since her dialysis cath has clotted off, using TPA to try to fix it. Kourt did come out of the OR unable to be closed and the defect of her belly is to big to use a would vac and to delicate right now. Yes her belly is still very open. They will need to do skin grafts and reconstruction. Kourt has gotten so chubby in the last year, I kept telling them they were putting to much weight on her but they wanted “reserves” Well now she has so much fat the ostomy is almost flush to her skin. I knew when she started getting foobs (fat boobs) they were giving her to many calories. Good thing is diet is under medical control and the extra calories did help they just overshot it by 10lbs they put 20lbs on her in a year….CRAZY! Kourt did come out of the OR with a chest tube to much fluid on her right lung. They did pull her NG tube today (one in her nose) decreased her ABX . She is still on alot of drips but she is talking!! She told Dr F to go away that the fellow already looked at her belly and he needed to go ask him. Also she cried and then told him that she did not get presents on her birthday…..Dr F went away ….Kourt “worked” him because I herd all about it from him, I had gone to take a shower. I told him “really? you think she didnt get presents? You have been played by a 8yr old” He also did not look at her belly because she told him “you always poke and hurt me”…..OH my !! Now she will always work him, he has caved to the kourt-a-tude….He is in for it now!! Today she told the dialysis nurses to GET OUT!! she hated her and NEVER come back….They are very annoying and she said what I was thinking, but she needs to not say “hate” its not a nice word find a different one. Everything else I was okay with, she has to let it out. She LOVES her other nurses so ….Dialysis nurses get picked on. On the floor its the poor care Partners. Time to tame the beast but I am so happy to see her fight and hear her spunk. Today I just giggled it was a joy to see that ……KOURTS BACK!!!