March 2011
17 posts
TODAY....its not over yet
kourt has had a great day. She is happy ! Today was a BIG day for her . She is now cathing twice a day. She was retching this morning but she is doing so much better this afternoon. She is excited to sell her art work and it gives her something to do while she is in the hospital. She needs to make sure she makes enough for people to buy. I heard her talking to her nurse and she was tell her,...
I don't even know what to say.
So I wont….
Kourt is okay had a decent day, I am hanging tough…with a few tears
PLEASE
Please let them wake me tonight to tell me they have organs for Kourt, if that cant happen please let her have no pain , bleeding, a day of joy tomorrow. Walking with no pain and without her belly leaking poop on her feet. Please let her have good days until her gift of life gets here…..Thats all I want then I WANT TO TAKE HER HOME;-) hanging tough
5 Top things said to parents of TX kids and what...
THESE ARE EVERYDAY QUESTIONS FROM PEOPLE WE DONT KNOW
1) Did you know before they were born?
2) Their going to be okay right? (in front of sibs etc)
3) So? they were born like this?
4) Oh thats so sad, they dont look sick.
5) How do you do it? We will pray for you….whats your name?
WHAT WE WISH PEOPLE WOULD SAY
1) I would like to learn more about transplants
2) Organ donation is...
I think I should trademark the Kourt A Tude..
It could be a dance or a song or just a wide spread way to discribe the kind of day you have had. Kourtney in one day has so many emotions. Happy, excited, frustrated, mad, sad, happy, mean, nice , fierce, amazing and one of a kind…this girl has them all in one day. I want so much more for her. she needs to experience so much more in life then what living in the hospital has to offer she came in a...
This is kourts NEW BLOG CB site no longer the BLOG
After 9 months in the hospital kourt is just grumpy and bored. Its hard to see her not happy but even harder when she is so rude and mean. I spend the day wonder what is going to come out of her mouth. This is not how I raise my children but can I blame her ? NO! Does she have to behave? YES! Sick or not I will not let her be disrespectful. She needs this transplant physcially and mentally....
kourts krew current website .Lots of changes... →
Book written about kourtney →
A honest account of what really happens in the life of a very sick child. A real lesson on how the whole family has to learn to live a whole new life. A very easy read in Journal format written by kourts mom
New to Tumblr..kourts new blog
This blog is great it enables me to post pics and videos and so much more. It updates FB and Twitter. I am in the process of gettting a very professional web site up and running. Working with a great Web designer who is donating his skills. I am really excited. Kourts krew is also on twitter. We are growing and it is exciting. Thank you Rachel for setting this up for me. I have the greatest...
How You Know...
Kourt: Rachel, wanna know how you know when a boy REALLY loves you?
Rachel: How, Kourt?
Kourt: That he'd do anything for you. That even if he broke both his legs he'd crawl to the ends of the earth to see you.
Kourt is getting IVIG tonight to boost her immune system. She was good all day walked more today then she has ever since her transplant. She is on my excerise plan, as long as it is safe and her bowel and belly can handel it. I am going to push her. If she wont work for mr PT needs to come back and kourt really just wants less people involved in her care. Less people coming in her room all day...
